Transcript

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Welcome to Soleo Health, where we help you simplify your complex care.
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In this video, you will learn about the signs and symptoms of bleeding and hemophilia.

0:10
We will review the types of bleeds, complications from bleeding, and when to seek care.

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We hope this educational video helps you identify a bleed, whether you are a patient or caregiver.

0:22
The goal is to prevent bleeds and treat the bleed as soon as you can.

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First, let’s review the types of bleeds that may occur.

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People with bleeding disorders can have minor cuts that don’t clot, or the bleeding stops and begins again.

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They can also have spontaneous nosebleeds that can be recurrent and heavy.

0:45
External bleeding can also occur in the mouth after biting the mouth, lips, or tongue.

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The most frequent sites for internal bleeds are the joints, usually the knee, ankle, elbow, and hip joints.

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At first, the joint may be described as tingly or bubbly.

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As blood begins to pool, the joint may feel tight, maybe warm or hot to the touch, and can become painful, especially when bending.

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Children may hold or protect the injured joint or start limping or crawling.

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Repetitive joint bleeds can cause irreversible damage to the joint.

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Once you have had one bleed in a joint, you are more likely to develop future bleeds in the same joint.

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Internal bleeds can also occur in muscles, particularly the groin, forearm, calf, thigh, or buttock muscles.

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Muscle bleeds can be extremely painful, and numbness and pale skin may be noted over the injured muscle.

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If left untreated, this can lead to nerve damage.

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Always seek medical attention or contact your hemophilia treatment center to report your symptoms.

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Soft tissue bleeds can occur and present with large bruising under the skin.

1:55
While the bruising looks severe, this is not usually painful.

1:59
Bleeding of the gums can occur, and bleeding can be difficult to stop when you or your child lose a tooth.

2:04
Always contact your hemophilia treatment center to notify your team of any dental issues.

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Bleeding can also occur within the brain, and it’s very serious.

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This type of bleed can occur spontaneously or after an injury.

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Signs of a possible brain bleed are painful headache, stiff neck, sleepiness, vomiting, sudden weakness, behavioral changes, difficulty with balance or walking, double vision, convulsion, or seizures.

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Other bleeds requiring immediate attention include those in the eye, throat, gastrointestinal or urinary tract, or any injury that causes a deep cut or laceration.

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Bleeding in the gastrointestinal tract may present with dark or bloody stools.

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Bleeding in the kidneys or bladder may present as blood in the urine.

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For any of these bleeds, call your hemophilia treatment center and go directly to the emergency room.

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Early treatment of bleeding is especially important for people with hemophilia.

3:10
You should follow your prescriber’s orders for factor and dose as soon as you can following an injury.

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Contact your Soleo Health pharmacist or hemophilia treatment center for questions or concerns about factor dosing.

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Following the factor administration, you’ll want to treat the swelling and pain in the area using the RICE method.

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Rest, rest and protect the injured area.

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Ice.

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Apply ice or something cold to reduce the swelling and pain.

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Ice will shrink the blood vessels, slow the blood flow to the area, and help the body to heal.

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Compression.

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Wrap the area with an elastic bandage and elevation.

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Keep your injured area at or above the level of your heart to reduce swelling.

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Remember that a person with a bleeding disorder will not bleed faster than anyone else.

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However, the bleeding will last longer if untreated.

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Seek emergency care if you or your child has signs and symptoms of bleeding in the brain.

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An injury in which bleeding will not stop.

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Swollen joints that are hot to the touch and painful to bend.

4:22
If you have a bleeding disorder, you may be concerned about your activity causing a bleed.

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But physical activity can actually help prevent joint bleeds by strengthening muscles and helping maintain a healthy body weight.

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Keep active and maintain a healthy weight for optimal joint health.

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Always consult with your hemophilia treatment center physical therapist for an exercise plan that works for you.

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It is very important to keep a record of when you have a bleed and how you treated it.

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You will want to share this information with your hematologist, hemophilia treatment center, and Soleo Health pharmacist or nurse.

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It is important to know the early signs of a bleed so that when a bleed happens, it can be treated and stopped as soon as possible.

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Early treatment is important to prevent damage in the body.

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There are various kinds of treatment for different bleeding disorders.

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Please consult with your hemophilia treatment center team for questions about bleeds or treatments.

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At Soleo Health, we have pharmacists, nurses, and advocates that understand your bleeding disorder and partner with your healthcare provider.