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Complex Care Coordination

Rare disease therapies demand disciplined coordination across the care continuum. We manage the complexity so patients and providers can focus on starting therapy sooner and staying on therapy longer.

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What Patients Can Expect 

  • A dedicated rare disease care team
  • Clear guidance through insurance coverage
  • Coordinated support to start therapy sooner
  • Ongoing engagement through treatment

What Providers Can Rely On

  • Rare disease specialty pharmacy expertise
  • Collaboration with pharmacists and nurses
  • Ongoing clinical updates and patient outcomes tracking
  •  Flexible infusion therapy options across multiple care settings

“With Soleo, I Walk Again”

Jay, Former Firefighter with Multifocal Motor Neuropathy

Within six weeks of his first symptoms, Jay went from numbness in his hands to becoming a full quadriplegic. Today, he walks again. Soleo manages the complexity of his rare disease care behind the scenes so Jay can focus on living.

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We Know Rare, We Live Rare

Navigating a rare disease requires more than access to a specialty medication. It requires a care team with the expertise to understand the unique challenges of each condition and the therapies used to treat it. The SoleoRareTM team brings deep experience across a broad and growing range of rare disease states, delivering specialized support designed around the complex needs of patients, providers, and families.

  • Acid Sphingomyelinase Deficiency (ASMD)
  • Acquired Coagulation Factor Deficiency
  • Amyotrophic Lateral Sclerosis (ALS)
  • Acute Hemolytic Uremic Syndrome (aHUS)
  • Acute Hepatic Porphyria (AHP)
  • Congenital Fibrinogen Deficiency
  • Chronic Inflammatory Demyelinating Polyneuropathy (CIDP)
  • Dermatomyositis
  • Duchenne Muscular Dystrophy (DMD)
  • Fabry Disease
  • Factor X Deficiency (FXD)
  • Factor XIII A-Subunit Deficiency
  • Fibrodysplasia Ossificans Progressiva (FOP)
  • Gaucher Disease Type 1
  • Generalized Myasthenia Gravis (gMG) (with and without exacerbation)
  • Granulomatosis with Polyangiitis (GPA)
  • Guillain-Barré Syndrome (GBS)
  • Hemophilia A
  • Hemophilia B
  • Hereditary Transthyretin Amyloid Cardiomyopathy (hATTR-CM)
  • Hunter Syndrome
  • X-Linked Hypophosphatemia (XLH)
  • Immunoglobulin G4 Related Disease (IgG4-RD)
  • Infectious Autoimmune Encephalitis (IAE)
  • Mucopolysaccharidosis I (MPS I)
  • Multifocal Motor Neuropathy (MMN)
  • Neuromyelitis Optica Spectrum Disorder (NMOSD)

Where Our Rare Disease Expertise Runs Deep

Rare disease therapies are among the most complex in medicine, highly specialized, clinically nuanced, and critical to get right. As a specialty pharmacy, we have built our entire model around knowing and managing that complexity.

Rare Disease Medications

Refer a Patient to Soleo Health

We welcome the opportunity to care for new patients. Our streamlined referral process makes it easy for providers to refer patients and initiate care quickly.

Referral Forms