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Isabella Short is a 27-year-old woman living with Factor X deficiency, a rare bleeding disorder that affects her blood’s ability to clot. This condition requires her to receive infusions three times a week to maintain her health and prevent life-threatening bleeds.
Isabella’s life took a devastating turn when she began using methamphetamine. Her addiction led to the collapse of multiple aspects of her life – she lost custody of her children and endured a toxic, abusive relationship. During this period, she lost her insurance coverage and couldn’t access her vital Factor X medication.
The consequences were severe and immediate. Without treatment, Isabella experienced frequent muscle and joint bleeds that left her hospitalized for months at a time. The pain was excruciating, and the swelling in her shoulders and legs was so severe she couldn’t walk.
Isabella’s relationship with Soleo Health began in 2015, marking the start of what would become a lifeline during both her brightest and darkest moments. From the beginning, her Soleo nurse provided personalized, attentive care, calling regularly to check on her supply needs, track her monthly bleeds, and monitor any changes in her condition.
“Without Soleo Health, I would be lost,” Isabella shares, highlighting how essential this support became to her survival.
Even during Isabella’s darkest days of addiction and illness, her Soleo nurse never abandoned her. Despite Isabella’s inability to receive treatment, her nurse maintained contact, consistently trying to help her find ways to access her medication and providing emotional support during an incredibly difficult time. This unwavering support exemplifies what Isabella describes as Soleo’s approach:
It’s not just healthcare – it’s a family.
This past year has marked a dramatic turnaround in Isabella’s life. Now receiving Coagadex treatment through Soleo Health, she’s experiencing freedoms she never thought possible with her condition: Athletic Activities: Isabella can now participate in sports, something that would have been unthinkable before. Personal Expression: She’s able to get tattoos despite the bleeding risks associated with her condition. Normal Life: For the first time, she feels like she can “live like a normal person”
Isabella enthusiastically recommends Soleo Health to other Factor X patients, emphasizing the caring, family-like approach that goes far beyond standard healthcare delivery. Her experience demonstrates how Soleo Health doesn’t just manage rare diseases—it supports the whole person through life’s challenges.
Soleo Health simplifies the care for my rare disease
Her story illustrates how comprehensive, compassionate care can be transformative, providing not just medical treatment but hope, support, and the foundation for rebuilding a life.
Isabella’s journey from the depths of addiction and illness to renewed health and possibility showcases both her personal strength and the power of having dedicated healthcare partners who never give up on their patients.